After one has lost two children to SMA Type 1, and two survived, life takes on a significantly precious meaning. You move from ”zippy’ to ‘coasting’, and ever mindful of the power and frailty of human life. You move closer to that microcosm community of loyal friends, and become more philosophical and mellow about life in general, and fearful and sometimes pessimistic about life in specific (as reported in the media on a daily basis). Your surviving children are your energizers.